This month the wife turned 40.
I decided to throw a surprise party for her. Actually, I have been planning it for over a year and was going to do it last year.
The wife is very suspicious. Any change in routine sets off her spider sense. Once that is going, she starts paying attention to other things and builds up to figuring what you are up to. As an example, if she is on the couch watching TV I might ask her if she wants something to drink. Her reply will most often be, "Yes, but you are not getting any tonight." I, of course, reply with righteous indignation. However, she would be correct as to my motives.
Suffice it to say, for a variety of reasons, she is very attuned to any changes in behaviour or activity. You can see that presented real challenges to pulling off a surprise party.
I thought about doing the surprise for her 39th, but that seemed sort of lame. So I started the planning last year. The party itself was very easy, BBQ in the backyard and invite all her friends. The hard part was keeping it secret.
To pull off the surprise I used a combination of secrecy and misdirection.
The first part was to say nothing to K. I forbid those who were helping me from saying the P word (party) in her presence. We had a family only party before the surprise party, and K gave away some of that. The wife even asked K some questions, trying to get information out of her. Luckily, K did not know anything and 4 year-olds have a problem with linear time. The wife told me later that when she hit up K for info, she said something about a party, but started giving her info about the family party, as if it was still to happen.
To help keep the surprise, all communication was done by email. I forbid anyone from calling me on the phone. Our phone saves all received calls, so I started deleting those on a regular basis, a few months prior, to build up a pattern. During the day as I surf the web, I usually keep my browser open and she often uses my login to surf when she comes home. I was sure I would forget and she would see my hotmail open with "Re: Surprise 40th birthday party" on an email header. I had to password protect my login. I thought this might be enough to set her on the trail, but I had a few things going for me. I had kept a password on my login before, and, just before I was going to put up the password, K got onto the laptop and closed all my tabs on a bunch of stuff I was reading. I made a big deal about this and then put on the password.
The misdirection was the most important part of the plan. She put on a surprise for my 40th, so no matter what, she was going to expect me to do the same. My plan was twofold. Have a family, low key party and rely on my reputation as a lazy, insensitive husband.
Her actual birthday was a week before the surprise. She had asked me to go to a dance with her the night before. She is always appreciative when I attend these functions, so that, plus a spa day I gave her (the thing to get her out of the house on the day) should be enough as a present. I got a friend of hers to go with her (to keep her under control), but even that raised suspicion. I had to coordinate with her to ensure we had our story straight, as the wife was sure to ask her. The story was I happened to bump into this friend and had mentioned to her that I had got the wife a spa day. The friend had then said that she had been wanting to go to a spa and would go with her. Again, as luck would have it, I actually bumped into her friend before this was to happen (although the story was already coordinated by email). One cannot just mention this to the wife. If you just start to tell her stuff, she will get suspicious as to why you are giving out this information. Luckily, I had K with me. One of my routines is to have K tell mommy what we did today. This was a great opportunity to get the information out that we had seen this friend and set up the plausible reason as to why she was going with the wife.
A funny bit to this saga, the friend who was to take her to the spa invited her for one of these Tupperware type parties (but it is not Tupperware, its something else that I cannot remember). The wife thought that this might be the surprise. She must have been so disappointed going into the party.
In conclusion, the surprise was a success. I think the wife is a bit upset that she was not able to figure it out. She prides herself on detecting these things. When I asked her if she was surprised, she played it down a bit, but I know I got her. She just doesn't want to admit it.
Future surprise notes: One may not wish to use a spa day where they get a deep tissue massage, to keep the surprisee away from the party. They tend to look tired and underwhelmed. Not the best way to act when you have 20+ people at your house.
Saturday, May 28, 2011
Friday, May 20, 2011
Not A Good Dad
I don't like the kind of father I am turning out to be.
K asks a lot of questions, makes a lot of demands and statements, as any four year old will do. I seem to get exasperated with her very easily. When I am doing something I tend to focus on it to the exclusion of everything else and any disruption or interruption is unwelcome. It forces me to change my focus. It is never a problem with adults, but K will fire off a constant stream of statements, usually when I am having difficulty dealing with her sister. I cannot keep the exasperation out of my voice when I answer " Yes, K".
I find that adults tends to think kids understand less than they do. K is smart, I think she already knows that her dad's answer really means that he does not want to talk to her right now. That is not how I want my relationship with my daughter to be.
J is sick, she has a viral infection. Infections and colds are dangerous for her. Because she cannot move around, the usual was of clearing ones lungs are difficult. Most children in her situation die of pneumonia or something related to it.
When she is sick I get worried and stressed. Last night I was holding her for 30 minutes while her body spasmed with coughing, as we tried to get the stuff out of her lungs. During these times, my worry is at its peak, as I deal with the feelings of helplessness, guilt for not doing enough and the what ifs. Of course, it is during this time that K will come up to me and demand juice or tell me that Santa's elves are very talented. Wrapped up in my own worry and doubt, I cannot keep the exasperation out of my voice.
I am pushing her away with my tone. Someday soon she will realize it, if she has not already.
How can I change these feelings? Will I lose both of my children, one to early death, the other to her father's rudeness?
K asks a lot of questions, makes a lot of demands and statements, as any four year old will do. I seem to get exasperated with her very easily. When I am doing something I tend to focus on it to the exclusion of everything else and any disruption or interruption is unwelcome. It forces me to change my focus. It is never a problem with adults, but K will fire off a constant stream of statements, usually when I am having difficulty dealing with her sister. I cannot keep the exasperation out of my voice when I answer " Yes, K".
I find that adults tends to think kids understand less than they do. K is smart, I think she already knows that her dad's answer really means that he does not want to talk to her right now. That is not how I want my relationship with my daughter to be.
J is sick, she has a viral infection. Infections and colds are dangerous for her. Because she cannot move around, the usual was of clearing ones lungs are difficult. Most children in her situation die of pneumonia or something related to it.
When she is sick I get worried and stressed. Last night I was holding her for 30 minutes while her body spasmed with coughing, as we tried to get the stuff out of her lungs. During these times, my worry is at its peak, as I deal with the feelings of helplessness, guilt for not doing enough and the what ifs. Of course, it is during this time that K will come up to me and demand juice or tell me that Santa's elves are very talented. Wrapped up in my own worry and doubt, I cannot keep the exasperation out of my voice.
I am pushing her away with my tone. Someday soon she will realize it, if she has not already.
How can I change these feelings? Will I lose both of my children, one to early death, the other to her father's rudeness?
Sunday, May 15, 2011
Introducing the Fire Sharks
We signed up K, who is now 4 years old, for soccer this year with the local association. I got wrangled into being the coach. I played soccer up until University and am familiar with the game. take anyone's job I signed up to be an assistant coach. soon after they called me up desprately asking me to be the head coach. At the U6 level, the coach is really the guy who brings the equipment and collects the jersey security cheques from the parents.
However, one of the key things you have to do is pick a team name. The association sets your team name like NASCAR, so everyone is Team (last name of the coach). It's not like I paid for the team, so I don't think naming it after me is appropriate. I decided we would let the kids decide, so before our second game we had a vote.
Due to me being the last one to pick up our jerseys, we got silver as our colour. I liked the name the Silverbacks, but another good suggestion from one of the players was the sharks. Unfortunately, by the second game he had entirely forgotten about his suggestion and wanted to be called the fire hawks.
We put it up to a vote, and, of course, my attempt to dodge any responsibility for the name failed as three voted for fire hawks and three for sharks.
Coaches command decision: Fire Sharks.
However, one of the key things you have to do is pick a team name. The association sets your team name like NASCAR, so everyone is Team (last name of the coach). It's not like I paid for the team, so I don't think naming it after me is appropriate. I decided we would let the kids decide, so before our second game we had a vote.
Due to me being the last one to pick up our jerseys, we got silver as our colour. I liked the name the Silverbacks, but another good suggestion from one of the players was the sharks. Unfortunately, by the second game he had entirely forgotten about his suggestion and wanted to be called the fire hawks.
We put it up to a vote, and, of course, my attempt to dodge any responsibility for the name failed as three voted for fire hawks and three for sharks.
Coaches command decision: Fire Sharks.
Monday, May 09, 2011
Adventures in Beekeeping - Prelude
We have decided to take up Beekeeping as a hobby.
When we moved out of the city, part of our reasoning was to have a bit of a hobby farm. We wanted to have a dog but I don't beleive in having one unless you have lots of room. Also, being more independent, living off the grid, all those things appealed to me. So anything that helps prepare for the Zombie Apocalyse is of interest to me.
Why Bees? Unfortunately, the left wing wife is a bit squemish when it comes to the harvesting part of farming. I am no expert (we both grew up in the suburbs), but the point rasing your own food is to eat it. The wife wants to have all kinds of animals but she refuses to eat them. I am not having a herd of cows or sheep just to watch them die of old age. That is a pretty expensive (and tasty) herd of pets. We are not so rich that we can afford to feed all these animals and not get anything back. We already have two children, I am not adding more unproductive animals to the mix.
So why bees? They are a compromise. They are relativley cheap (I spent less than $500 for everything needed to get started) and it is not such a big deal if I screw up and kill them all. They need some care, but not as much as many animals, and if you neglect them the most likely result is no honey, as opposed to a stinking cow carcass.
And if we get our place designated as a hobby farm, I can cut my property taxes by half.
When we moved out of the city, part of our reasoning was to have a bit of a hobby farm. We wanted to have a dog but I don't beleive in having one unless you have lots of room. Also, being more independent, living off the grid, all those things appealed to me. So anything that helps prepare for the Zombie Apocalyse is of interest to me.
Why Bees? Unfortunately, the left wing wife is a bit squemish when it comes to the harvesting part of farming. I am no expert (we both grew up in the suburbs), but the point rasing your own food is to eat it. The wife wants to have all kinds of animals but she refuses to eat them. I am not having a herd of cows or sheep just to watch them die of old age. That is a pretty expensive (and tasty) herd of pets. We are not so rich that we can afford to feed all these animals and not get anything back. We already have two children, I am not adding more unproductive animals to the mix.
So why bees? They are a compromise. They are relativley cheap (I spent less than $500 for everything needed to get started) and it is not such a big deal if I screw up and kill them all. They need some care, but not as much as many animals, and if you neglect them the most likely result is no honey, as opposed to a stinking cow carcass.
And if we get our place designated as a hobby farm, I can cut my property taxes by half.
Friday, May 06, 2011
Posting Again
I am going to start posting again. Things have been busy around here. With the kids growing up and various new hobbies we are pursuing, there might be stuff worth posting.
This blog will focus on the following (in no particular order):
Deal with the left wing wife
Dealing with the kids
Taking care of a severely handicapped child
Country life around our 20 acres
Beekeeping (just started it yesterday)
Politics
So expect a wide variety of stuff with a focus on the lighter side.
If anything I post interests or informs you, great. If not, too bad.
It really is more about me, not you.
This blog will focus on the following (in no particular order):
Deal with the left wing wife
Dealing with the kids
Taking care of a severely handicapped child
Country life around our 20 acres
Beekeeping (just started it yesterday)
Politics
So expect a wide variety of stuff with a focus on the lighter side.
If anything I post interests or informs you, great. If not, too bad.
It really is more about me, not you.
Wednesday, June 02, 2010
Thank you Al Gore
Here is a picture taken of my back yard on Friday.
Global Warming my ass!
Normally, there is so little rainfall in our part of Alberta, I can go much of the summer without having to cut the grass. Spring is the time I have to do most of the cutting, and this spring has been very wet. I consider spring begun when I have to do my first cutting.
K did get one last chance to build a snowman. The snow was think and easy rolling. I had cut the grass twice before this snowfall. With the two cuttings, there was a lot of mulch on the lawn.
She named the snowman "Grassy".
Monday, May 17, 2010
Irony thy name is The Laugh Shop
The wife had her birthday on Friday, so I took her out for Indian food and to a local comedy club called The Laugh Shop.
Now, I have been to comedy clubs before. I wanted a seat not too far in the back so we could see, but not too close to the front, so as not to be in the firing line. Guess where they put us? The club is very small, so our table was to one side, practically on the stage. The light was shining in my eyes and it felt like we were on stage with the guy. There was another table beside us, in the same situation, however, those people did not show up. On the other side of the stage there was a large party so their tables were pushed together, out of the light. Even the front row, directly in front, was less obvious than us, as they were out of the light and much lower than the stage. Ironic.
I was the biggest target all night. To be fair, I offered us up when I volunteered that the wife was having a birthday. Of course, the guy focused on me instead.
His name was Mike and was from New York, and served as the opening act for the headliner. I actually thought he was funnier than the other guy.
After picking on some poor blue collar, already half in the bag already guy Trevor, he focused on me. His main thing was suggesting that I was "retarded", that I thought my family were pickles, and I was going to my house on the moon after the show. He called me "Pickle" all night and did the stereotypical mannerisms of a "retarded" person. The crowd thought it was funny. I, less so, seeing as I was the butt of the jokes.
As our daughter is severely mentally handicapped, the wife was not too impressed and was going to write about our situation on the back of the comment card. I stopped her. Some of you may know of a case brought up to a Human Rights Commission in B.C. where this comic made fun of some lesbians. Comedy can be hit and miss, but I would rather the guy be free to say what he wants. Writing on the comment card would do nothing, except perhaps for the owner to refuse some acts because they might offend. Being offended is a chance you take and I would rather take that chance than have censorship.
I did not get a chance to bring up the situation of our daughter. Too bad, I thought that would be really funny, in a put-the-comic-in-his-place sort of way.
The sad thing is, I wish and I pray that my daughter was only as mentally handicapped as the stereotype that Mike portrayed. Imagine if J could walk, talk, take interest in things and smile.
That is irony.
Now, I have been to comedy clubs before. I wanted a seat not too far in the back so we could see, but not too close to the front, so as not to be in the firing line. Guess where they put us? The club is very small, so our table was to one side, practically on the stage. The light was shining in my eyes and it felt like we were on stage with the guy. There was another table beside us, in the same situation, however, those people did not show up. On the other side of the stage there was a large party so their tables were pushed together, out of the light. Even the front row, directly in front, was less obvious than us, as they were out of the light and much lower than the stage. Ironic.
I was the biggest target all night. To be fair, I offered us up when I volunteered that the wife was having a birthday. Of course, the guy focused on me instead.
His name was Mike and was from New York, and served as the opening act for the headliner. I actually thought he was funnier than the other guy.
After picking on some poor blue collar, already half in the bag already guy Trevor, he focused on me. His main thing was suggesting that I was "retarded", that I thought my family were pickles, and I was going to my house on the moon after the show. He called me "Pickle" all night and did the stereotypical mannerisms of a "retarded" person. The crowd thought it was funny. I, less so, seeing as I was the butt of the jokes.
As our daughter is severely mentally handicapped, the wife was not too impressed and was going to write about our situation on the back of the comment card. I stopped her. Some of you may know of a case brought up to a Human Rights Commission in B.C. where this comic made fun of some lesbians. Comedy can be hit and miss, but I would rather the guy be free to say what he wants. Writing on the comment card would do nothing, except perhaps for the owner to refuse some acts because they might offend. Being offended is a chance you take and I would rather take that chance than have censorship.
I did not get a chance to bring up the situation of our daughter. Too bad, I thought that would be really funny, in a put-the-comic-in-his-place sort of way.
The sad thing is, I wish and I pray that my daughter was only as mentally handicapped as the stereotype that Mike portrayed. Imagine if J could walk, talk, take interest in things and smile.
That is irony.
Thursday, May 13, 2010
More posting
Well, things have been a bit busy around the house for the last few years. However, I think it is time to start up this blog again. I will begin posting, some recent stuff and also looking back and updating on our lives.
Update: You may find things a bit disjointed. I will be writing about the last 2 years as well as what has been going on recently. It's my blog, so you will just have to suck it up.
Update: You may find things a bit disjointed. I will be writing about the last 2 years as well as what has been going on recently. It's my blog, so you will just have to suck it up.
Wednesday, May 14, 2008
The Challanges of being a Stay-At-Home Dad
Let me be completely honest. I didn't think taking care of the kids would be very hard. Cooking, washing clothes, etc, it's not that difficult. My opinion hasn't changed. What has changed is my appreciation of the mental aspects. I had no idea my sanity would be taxed this much. I wanted to have kids, and found, for the most part, I enjoyed dealing with them. I helped teach taekwondo for a few years, so had some small measure of an idea what they were like.
I am still able to deal with my daughters in a way I am happy with, the problem comes when I get frustrated, angry, etc. This, I think, is when most parents act or deal with their children in a way that they are not proud of. We are all human, we all make mistakes The key is reducing those moments to the smallest number possible.
The main mental challenge I face is the isolation. Two year old conversation consists mostly of "Don't do that", or "Put that down!"interspaced with "Why are you crying?", "Tell Daddy what you want", and "Use you words".
In order to keep from going insane, you have to get out. Unfortunately, a few things conspire to make this difficult. Firstly, I am a bit of a home body. I like to stay at home, in my sanctuary. Having two the same age also makes it more difficult, as well as Jocelyn's situation.
But the last thing is the most difficult. People can claim otherwise, but the only reason any parent takes the kids anywhere is to talk to other adults and have an adult conversation. The kids don't really care. My daughter will find a cardboard box or a rock as interesting as a trip, so why go through all the trouble of getting them dressed, getting diapers, toys, wipes, food, etc together just to go somewhere when they would be just as happy at home?
It's for the parents.
That is where being a man is a problem. In this area of Alberta anyway, being a stay at home dad is still a bit of a novelty. Based on my own observations, 99.9% of all stay at home parents are women. When the Wife was pregnant, she came across a stay at home mom group advertising at the local mall. She asked if her husband could join, as he was going to stay home with the kids. They laughed. They were tripping over themselves once they saw she was serious, but, even with all the crap about equality over the past 20 years, it did not occur to them that she might be serious.
So how to join one of these groups? Although I am sure I would be outwardly welcomed, (politically correctness and all that) I feel a bit uncomfortable. It is always all women except me, and I feel like an outsider. I feel like the only guy at the slumber party and I am somehow inhibiting these people from being themselves. I understand that, as any group of guys is not the same when there are women in the group. Besides, they want to talk about women things, which I am not very interested in. The only thing we share in common is raising kids, and that is the last thing I want to talk about. The only solution is some sort of Dad group.
As you can imagine, in our area there are plenty of mom groups around. Dads, not so much. Stay at home dads are somewhat like sightings of Bigfoot or the Lock Ness Monster. When people find out I look after the kids, they often say they know a friend of a friend of a friend who stays at home with their kids. However, no one knows their names or has ever met them. So far, I have heard of two other men in our town looking after kids, and both of these had all the detail and credibility of a Bigfoot sighting.
If there are any guys in the Edmonton area wanting to prevent kid-induced insanity, drop me a line.
I am still able to deal with my daughters in a way I am happy with, the problem comes when I get frustrated, angry, etc. This, I think, is when most parents act or deal with their children in a way that they are not proud of. We are all human, we all make mistakes The key is reducing those moments to the smallest number possible.
The main mental challenge I face is the isolation. Two year old conversation consists mostly of "Don't do that", or "Put that down!"interspaced with "Why are you crying?", "Tell Daddy what you want", and "Use you words".
In order to keep from going insane, you have to get out. Unfortunately, a few things conspire to make this difficult. Firstly, I am a bit of a home body. I like to stay at home, in my sanctuary. Having two the same age also makes it more difficult, as well as Jocelyn's situation.
But the last thing is the most difficult. People can claim otherwise, but the only reason any parent takes the kids anywhere is to talk to other adults and have an adult conversation. The kids don't really care. My daughter will find a cardboard box or a rock as interesting as a trip, so why go through all the trouble of getting them dressed, getting diapers, toys, wipes, food, etc together just to go somewhere when they would be just as happy at home?
It's for the parents.
That is where being a man is a problem. In this area of Alberta anyway, being a stay at home dad is still a bit of a novelty. Based on my own observations, 99.9% of all stay at home parents are women. When the Wife was pregnant, she came across a stay at home mom group advertising at the local mall. She asked if her husband could join, as he was going to stay home with the kids. They laughed. They were tripping over themselves once they saw she was serious, but, even with all the crap about equality over the past 20 years, it did not occur to them that she might be serious.
So how to join one of these groups? Although I am sure I would be outwardly welcomed, (politically correctness and all that) I feel a bit uncomfortable. It is always all women except me, and I feel like an outsider. I feel like the only guy at the slumber party and I am somehow inhibiting these people from being themselves. I understand that, as any group of guys is not the same when there are women in the group. Besides, they want to talk about women things, which I am not very interested in. The only thing we share in common is raising kids, and that is the last thing I want to talk about. The only solution is some sort of Dad group.
As you can imagine, in our area there are plenty of mom groups around. Dads, not so much. Stay at home dads are somewhat like sightings of Bigfoot or the Lock Ness Monster. When people find out I look after the kids, they often say they know a friend of a friend of a friend who stays at home with their kids. However, no one knows their names or has ever met them. So far, I have heard of two other men in our town looking after kids, and both of these had all the detail and credibility of a Bigfoot sighting.
If there are any guys in the Edmonton area wanting to prevent kid-induced insanity, drop me a line.
Monday, March 31, 2008
A Severe Lack of Posting
I haven't posted on this blog for over three months. I just haven't felt like it.
Well, that is not completely true. When the problem with my daughter came about, the focus of this blog changed. The political of differences in world view between my wife and I became less important. I hoped that this blog would be more about dealing with our situation and would provide information to other stay at home dads and those dealing with one mentally handicapped twin. A somewhat small set of people.
I hoped that this blog would provide information and support. I hoped it would provide hope.
And that is the real reason for a lack of posting. The truth is I have not been very hopeful these last few months. In fact, I have been depressed. More depressed than I have been anytime in my life.
I think I am a generally upbeat person, more about getting on with it than wallowing in mistakes or situations that I could not change. I recognize now that there have been difficult times in the past that have affected me. But never has it been this bad.
The truth is I am not interested in getting up in the morning. Each day is exactly the same. Get up, change babies, stop one of them from doing various things, encouraging others, feed them, make dinner, put them to bed. Repeat until death. In fact, I have spent more time in escapist pursuits, such as reading, to make me forget about my situation. In fact, I am like a crack addict, my life being counted out between "hits", except my hits are those times when I can forget that my life is all about menial tasks that never end, and will never end because one of my children will never be able to take care of herself in any way.
I have more respect for my stay at home mom than ever. I don't know how she did it and I have felt many times over the past few months that I cannot. I always thought I would be a good father. Staying home and looking after the children has made me question that.
In addition to constantly questioning my fitness as a parent, there is Jocelyn. I can't help but be depressed every time I think about her. With what limited mental capacity she has, I can still see a personality there. All I can think about is the lost potential of her life. And the close sister that Katherine is missing out on. The unique experience of having an identical twin, which should have been a wonderful experience for both of them, is gone.
And then, in moments of my own selfishness, I think of myself. The one thing about having kids and going through all this with them is the thought that they will eventually grow up. I can survive a few years of changing diapers and blowing runny noses if there is light at the end of the tunnel. Except there is no light. Jocelyn will never grow up. For the rest of my life or hers, I will be looking after an infant. The only release from this obligation will be death of one of us. Since if I die I won't care about getting my life back, the only way my family will ever be normal is if she does. And it is a likely occurrence. Most kids in her situation survive five or ten years. So, my salvation from a life of being responsible for every aspect of my child's life is her death. I hate thinking this. Yet I cannot imagine what life would be like without her and I would miss her terribly. So, release from this obligation means a giant hole in my life and the guilt that some part of me, however small, wished for it to happen. Or I can continue to have this obligation, with no end in sight and the feelings that go along with it.
I have heard how often some people, after many years of life, are accepting of death. Either they feel they have lived a good life or welcome death as a release from pain, physical or emotional. I never understood that. I always thought that I would want to live forever, always interested in what might happen next and in seeing everything there might be to see in this universe.
Not anymore.
Well, that is not completely true. When the problem with my daughter came about, the focus of this blog changed. The political of differences in world view between my wife and I became less important. I hoped that this blog would be more about dealing with our situation and would provide information to other stay at home dads and those dealing with one mentally handicapped twin. A somewhat small set of people.
I hoped that this blog would provide information and support. I hoped it would provide hope.
And that is the real reason for a lack of posting. The truth is I have not been very hopeful these last few months. In fact, I have been depressed. More depressed than I have been anytime in my life.
I think I am a generally upbeat person, more about getting on with it than wallowing in mistakes or situations that I could not change. I recognize now that there have been difficult times in the past that have affected me. But never has it been this bad.
The truth is I am not interested in getting up in the morning. Each day is exactly the same. Get up, change babies, stop one of them from doing various things, encouraging others, feed them, make dinner, put them to bed. Repeat until death. In fact, I have spent more time in escapist pursuits, such as reading, to make me forget about my situation. In fact, I am like a crack addict, my life being counted out between "hits", except my hits are those times when I can forget that my life is all about menial tasks that never end, and will never end because one of my children will never be able to take care of herself in any way.
I have more respect for my stay at home mom than ever. I don't know how she did it and I have felt many times over the past few months that I cannot. I always thought I would be a good father. Staying home and looking after the children has made me question that.
In addition to constantly questioning my fitness as a parent, there is Jocelyn. I can't help but be depressed every time I think about her. With what limited mental capacity she has, I can still see a personality there. All I can think about is the lost potential of her life. And the close sister that Katherine is missing out on. The unique experience of having an identical twin, which should have been a wonderful experience for both of them, is gone.
And then, in moments of my own selfishness, I think of myself. The one thing about having kids and going through all this with them is the thought that they will eventually grow up. I can survive a few years of changing diapers and blowing runny noses if there is light at the end of the tunnel. Except there is no light. Jocelyn will never grow up. For the rest of my life or hers, I will be looking after an infant. The only release from this obligation will be death of one of us. Since if I die I won't care about getting my life back, the only way my family will ever be normal is if she does. And it is a likely occurrence. Most kids in her situation survive five or ten years. So, my salvation from a life of being responsible for every aspect of my child's life is her death. I hate thinking this. Yet I cannot imagine what life would be like without her and I would miss her terribly. So, release from this obligation means a giant hole in my life and the guilt that some part of me, however small, wished for it to happen. Or I can continue to have this obligation, with no end in sight and the feelings that go along with it.
I have heard how often some people, after many years of life, are accepting of death. Either they feel they have lived a good life or welcome death as a release from pain, physical or emotional. I never understood that. I always thought that I would want to live forever, always interested in what might happen next and in seeing everything there might be to see in this universe.
Not anymore.
Tuesday, December 11, 2007
How you know there is nothing they can do for your child..
...when they start to focus on you.
Yesterday we took Jocelyn for her appointment with a specialist who focuses on the problems with her spine and hip. We got pretty much what we expected, but some, sort of good news. Although her spine is curving and will likely eventually bend her so it starts to compress her organs on that side, there is a small chance it may not progress any further. Also, it will take many years, (probably 4) before it gets that bad, so we have time. The same thing for her hip. Although it appears to be starting to dislocate, there is a chance it will progress no further. We have about 2 years before that becomes critical. We can pretend to be a normal family for a bit longer.
The real interesting part comes after talking about her. This is when he talks about us, the parents, and alternative therapies. Alternate therapies are those with no studies showing they work or do not work. Alternative therapies range from stretching (no studies prove that this will help with her hip) to all sorts of weird, witch doctor type stuff.
effect, something like 40% of people will report improvement from anything as long as they He did not propose or endorse any of these things. He made it clear it is up to us and that we must look at it. (The wife has been doing a lot of research on this stuff and seemed to know more about some of them than he did. Also, due to the placebobelieve it may help.) The only caution he gave us is the effect that alternative therapies can have on a marriage and families. There are people who have mortgaged their house to pay for this stuff. As well, usually one spouse wants to try anything while the other thinks there is no point, and this leads to serious problems when the family is poor and living on the street and one spouse thought it was a waste of money.
So, it seems that since there is very little we can do for our daughter, the biggest problem we face is dealing with the effects of that and the possible break up of our marriage/family.
For me, I want to do what is best for our daughter. To me, that seems to be making her as comfortable as possible. At this point, there is nothing we can do to treat her problem, only the symptoms. I am not willing to mortgage the farm when it won't address the problem.
If there was even a slim chance we could treat the situation with her brain, I might feel differently.
Yesterday we took Jocelyn for her appointment with a specialist who focuses on the problems with her spine and hip. We got pretty much what we expected, but some, sort of good news. Although her spine is curving and will likely eventually bend her so it starts to compress her organs on that side, there is a small chance it may not progress any further. Also, it will take many years, (probably 4) before it gets that bad, so we have time. The same thing for her hip. Although it appears to be starting to dislocate, there is a chance it will progress no further. We have about 2 years before that becomes critical. We can pretend to be a normal family for a bit longer.
The real interesting part comes after talking about her. This is when he talks about us, the parents, and alternative therapies. Alternate therapies are those with no studies showing they work or do not work. Alternative therapies range from stretching (no studies prove that this will help with her hip) to all sorts of weird, witch doctor type stuff.
effect, something like 40% of people will report improvement from anything as long as they He did not propose or endorse any of these things. He made it clear it is up to us and that we must look at it. (The wife has been doing a lot of research on this stuff and seemed to know more about some of them than he did. Also, due to the placebobelieve it may help.) The only caution he gave us is the effect that alternative therapies can have on a marriage and families. There are people who have mortgaged their house to pay for this stuff. As well, usually one spouse wants to try anything while the other thinks there is no point, and this leads to serious problems when the family is poor and living on the street and one spouse thought it was a waste of money.
So, it seems that since there is very little we can do for our daughter, the biggest problem we face is dealing with the effects of that and the possible break up of our marriage/family.
For me, I want to do what is best for our daughter. To me, that seems to be making her as comfortable as possible. At this point, there is nothing we can do to treat her problem, only the symptoms. I am not willing to mortgage the farm when it won't address the problem.
If there was even a slim chance we could treat the situation with her brain, I might feel differently.
Friday, December 07, 2007
Try these shoes on for a while
Robert Latimer is back in the news. He was up for parole this week after spending the last 15 years in prison.
There has been some discussion of this issue at SDA and Halls of macadamia, two blogs which I frequent.
I wanted to give a bit of perspective on this issue from someone who may be facing it in the future. My own opinion of Mr. Latimer is that while I don't condone what he did, I can understand the circumstances. He has more than paid his debt to society and should be released.
A lot of the comments I have read on this issue come from people that I think have not examined the situation.
Try this.
Look at your child. Bring up all the feelings you have for that child. All the love, the desire to protect, the feeling that you would do anything for that child. Now, imagine that when that child was 3 months old, you were told that, not due to anything that anyone did, through no fault of your own, it just being "one of those things", your child was severely brain damaged. Although that is not exactly true. The truth being that she does not have much of a brain to damage. In fact, you figure her brain is about 25% of her twin sister (the doctors don't tell you this, it is your estimate, based on the fact that her head is noticeably smaller than her sister and you saw the scans of her brain, and there was significantly more black areas (areas of nothing, just fluid), than white areas).
At your pediatrician's you ask how long she is expected to live. He says 5 years, 10, maybe 20, maybe more, we just don't know. However, he will tell you that he he has never seen a baby with this much damage survive (the doctor is in his sixties and has probably been practicing for over 40 years. He is well known throughout the city and is respected as a good doctor). He then suggests that you may want to consider how much you want to treat her when she gets sick. He tiptoes around the point by stating that in most of these cases, the baby gets pneumonia from fluid in the lungs and most parents deny extreme measures (ie antibiotics. (when did antibiotics become extreme?)) and after a few bouts of pneumonia, probably over a number of years, the patient dies.
Your wife drives home because you can't stop crying. And I mean crying, like uncontrollable sobs, while the words, "how can I make a decision to let my baby die" run over and over through you mind.
Fast forward one year. Your daughter is not in pain, but it is a struggle to get enough of the food she needs through the tube in her stomach. She throws up at least once a day, and you have spent the last year changing her feeding habits, formula, time and the rate in an effort to minimize it. When not asleep, she sounds as if she is fighting to breathe and not to choke. You have an appointment next week where you will discuss what to do about the fact that her muscle contractions are starting to force one hip out of alignment and she will probably dislocate it soon. Her spine is severely curved, even for a baby so young. At least she doesn't have seizures (they think she does not have enough brain matter to have them).
class or girl Now consider that, with such little brain matter, she is not going to get better. Her quality of life will not improve past that of a month old baby. She will never walk, talk, or feed herself. She will likely never reach for anything voluntarily, to form a desire to do something and then do it. She will never be able to say I love you daddy. You are not even sure what she can see or hear, although she does seem to, at times, turn towards the sound of your voice. You decide that you will take that as a sign that she knows that you are her dad and you will hold that as tight as you can.
However, you cannot live in a fantasy world all the time. You have to fact the facts. No amount of physical therapy, visual therapy, stimulation or anything is going to improve her quality of life, even though you do all of them. What else can you do? She is your child. Now, imagine forward ten or eleven years from now. The curved spine and hip are not going to get better. All they can do is slow the rate at which they progress. What will her hip and spine be like in then, if she is even alive? How much pain will she be in? What will her quality of life be like. Remember also that you have other children. You want their live to be as normal as possible. Do you want your other child to miss out on ballet and girl guides because of her sister? Do you want them to begin to resent their sister? What if your disabled daughter outlives you? She is your child, it is your duty to care for her, but do you really want to burden her sister with that when you die?
Welcome to my world.
Try putting yourself in Mr. Latimer's shoes before you condemn him.
There has been some discussion of this issue at SDA and Halls of macadamia, two blogs which I frequent.
I wanted to give a bit of perspective on this issue from someone who may be facing it in the future. My own opinion of Mr. Latimer is that while I don't condone what he did, I can understand the circumstances. He has more than paid his debt to society and should be released.
A lot of the comments I have read on this issue come from people that I think have not examined the situation.
Try this.
Look at your child. Bring up all the feelings you have for that child. All the love, the desire to protect, the feeling that you would do anything for that child. Now, imagine that when that child was 3 months old, you were told that, not due to anything that anyone did, through no fault of your own, it just being "one of those things", your child was severely brain damaged. Although that is not exactly true. The truth being that she does not have much of a brain to damage. In fact, you figure her brain is about 25% of her twin sister (the doctors don't tell you this, it is your estimate, based on the fact that her head is noticeably smaller than her sister and you saw the scans of her brain, and there was significantly more black areas (areas of nothing, just fluid), than white areas).
At your pediatrician's you ask how long she is expected to live. He says 5 years, 10, maybe 20, maybe more, we just don't know. However, he will tell you that he he has never seen a baby with this much damage survive (the doctor is in his sixties and has probably been practicing for over 40 years. He is well known throughout the city and is respected as a good doctor). He then suggests that you may want to consider how much you want to treat her when she gets sick. He tiptoes around the point by stating that in most of these cases, the baby gets pneumonia from fluid in the lungs and most parents deny extreme measures (ie antibiotics. (when did antibiotics become extreme?)) and after a few bouts of pneumonia, probably over a number of years, the patient dies.
Your wife drives home because you can't stop crying. And I mean crying, like uncontrollable sobs, while the words, "how can I make a decision to let my baby die" run over and over through you mind.
Fast forward one year. Your daughter is not in pain, but it is a struggle to get enough of the food she needs through the tube in her stomach. She throws up at least once a day, and you have spent the last year changing her feeding habits, formula, time and the rate in an effort to minimize it. When not asleep, she sounds as if she is fighting to breathe and not to choke. You have an appointment next week where you will discuss what to do about the fact that her muscle contractions are starting to force one hip out of alignment and she will probably dislocate it soon. Her spine is severely curved, even for a baby so young. At least she doesn't have seizures (they think she does not have enough brain matter to have them).
class or girl Now consider that, with such little brain matter, she is not going to get better. Her quality of life will not improve past that of a month old baby. She will never walk, talk, or feed herself. She will likely never reach for anything voluntarily, to form a desire to do something and then do it. She will never be able to say I love you daddy. You are not even sure what she can see or hear, although she does seem to, at times, turn towards the sound of your voice. You decide that you will take that as a sign that she knows that you are her dad and you will hold that as tight as you can.
However, you cannot live in a fantasy world all the time. You have to fact the facts. No amount of physical therapy, visual therapy, stimulation or anything is going to improve her quality of life, even though you do all of them. What else can you do? She is your child. Now, imagine forward ten or eleven years from now. The curved spine and hip are not going to get better. All they can do is slow the rate at which they progress. What will her hip and spine be like in then, if she is even alive? How much pain will she be in? What will her quality of life be like. Remember also that you have other children. You want their live to be as normal as possible. Do you want your other child to miss out on ballet and girl guides because of her sister? Do you want them to begin to resent their sister? What if your disabled daughter outlives you? She is your child, it is your duty to care for her, but do you really want to burden her sister with that when you die?
Welcome to my world.
Try putting yourself in Mr. Latimer's shoes before you condemn him.
Annoying Telemarketers
We recently got high speed internet access. Before, I would spend much of the day connected to the net at dial up speeds, browsing blog, read news, etc.
However, the down side is now I am rushing to answer the phone and am getting all the telemarketers.
Citibank is the worst. We don’t have any business with them at all, which I suppose is why they are so insistent. They got the wife’s name somehow and they call at least once a week. Of course, she is never here when they call, so they always say they will call back. I few times I pretended to be her, just to see what they want (They don’t even have her first name, just an initial, so you know they are selling something). They just want us to use their credit card with the “new, low introductory rate offer”. How stupid do they think we are? Nine percent for the first few months then up to 18.75% and a yearly fee. Some deal.
Once, I thought I would test them a bit (Sometimes its nice to talk to an adult) I said I was interested but my present credit card has no fee, and I want a lower average rate, what can you do for me? The silence on the other end was deafening. They actually hung up on me.
Of course, that gets tiring real quick. So after only a few days of answering the phone where 90% of the time it is Citibank, I have had enough.
The next time they call I am going to threaten them by saying I will blow an airhorn in the phone if they do not stop calling. A Man’s home is supposed to be his castle and time is precious. I shouldn’t have to spend a portion of that fighting off salespeople.
Oh, and don’t talk to me about do not call lists. I should not have to call someone to tell them to stop calling me. I should be able to tell them when they call not to call anymore.
Friday, November 16, 2007
Trapped
I used to hear about how women could feel trapped staying at home. I would see/hear about shows, such as Oprah, where women would talk about how hard it was to be a stay at home parent. I would listen but never believe. I mean, stay at home, no stress from work, just throw in a few loads of laundry once in a while. How hard could that be?
I still believe it is easy in that respect, but it is the mental aspects that are the hardest.
You hear men (great fodder for comedy) talk about coming home from a hard day at work and the wife just laying into them about nothing, all mad about something very minor that happened days ago. They would chalk it up to hormones or something of that nature.
It's not hormonal, as I just experienced it.
For the last three hours I have been trying to get a few things done and make a few simple phone calls. Katherine has been very demanding of attention at the worst possible moments and cannot be distracted. I hate whining in children, and she can be very effective at it if she doesn't get what she wants.
After three hours of this I have a headache and I feel like I am going to snap. I just made a typo and I had an urge to throw this laptop.
I am angry. But I can't take it out on the children, because they do not know any better and then I would be a bad parent. The logical, or most readily available target is the wife.
If the wife can home right now I would find any excuse to start a fight so I could have an outlet.
Hopefully a telemarketer will call before she gets home so I can take it out on them.
Honey, if you are reading this at work, bring flowers.
I still believe it is easy in that respect, but it is the mental aspects that are the hardest.
You hear men (great fodder for comedy) talk about coming home from a hard day at work and the wife just laying into them about nothing, all mad about something very minor that happened days ago. They would chalk it up to hormones or something of that nature.
It's not hormonal, as I just experienced it.
For the last three hours I have been trying to get a few things done and make a few simple phone calls. Katherine has been very demanding of attention at the worst possible moments and cannot be distracted. I hate whining in children, and she can be very effective at it if she doesn't get what she wants.
After three hours of this I have a headache and I feel like I am going to snap. I just made a typo and I had an urge to throw this laptop.
I am angry. But I can't take it out on the children, because they do not know any better and then I would be a bad parent. The logical, or most readily available target is the wife.
If the wife can home right now I would find any excuse to start a fight so I could have an outlet.
Hopefully a telemarketer will call before she gets home so I can take it out on them.
Honey, if you are reading this at work, bring flowers.
Thursday, November 15, 2007
First Words
I think Katherine said her first words today.
I was lying on the couch while she was climbing on me and she hit me in the chest and said "Da-da-da". It is not unusual for a child's first words to be da-da, and she has been saying that and much more for some time, but this is the first indication that it is not just random words. Of course, I have been pointing to my chest and saying "da-da" for months now, so it may just be random.
The wife, ever eager to rain on my parade, immediately announced that the other day Katherine hit herself in the chest and said "da-da", so it may be that she thinks that is the word for chest.
Either way, this will be the official date of her first word.
I was lying on the couch while she was climbing on me and she hit me in the chest and said "Da-da-da". It is not unusual for a child's first words to be da-da, and she has been saying that and much more for some time, but this is the first indication that it is not just random words. Of course, I have been pointing to my chest and saying "da-da" for months now, so it may just be random.
The wife, ever eager to rain on my parade, immediately announced that the other day Katherine hit herself in the chest and said "da-da", so it may be that she thinks that is the word for chest.
Either way, this will be the official date of her first word.
Thursday, September 06, 2007
Another First
Yesterday, Katherine caused her first serious injury to herself.
I was in our living room and she was roaming. She moved into our bedroom and found some metal clothes hangers that were on the floor. Of course, everything goes into her mouth and she used the cut end to open a gash on the inside of her cheek.
I pieced this together after the fact. The first I knew of it was a loud scream and great gobs of blood in her mouth, over her clothes and on the floor.
Nothing too serious, and no trip to the hospital was required, but I have now experienced what it is like to hear a scream of distress from your child and come to find lots of blood from and unknown source.
I was in our living room and she was roaming. She moved into our bedroom and found some metal clothes hangers that were on the floor. Of course, everything goes into her mouth and she used the cut end to open a gash on the inside of her cheek.
I pieced this together after the fact. The first I knew of it was a loud scream and great gobs of blood in her mouth, over her clothes and on the floor.
Nothing too serious, and no trip to the hospital was required, but I have now experienced what it is like to hear a scream of distress from your child and come to find lots of blood from and unknown source.
Tuesday, September 04, 2007
Gone Swimming
Today was the start of extra activities with the twins. We went swimming at our local community rec center. At their age, swimming class consists of splashing, kicking and floating (with help). Katherine really enjoyed it, only becoming upset when I did not let her go off on her own. Jocelyn cannot participate at the same level as Katherine, but she did not cry and seemed to enjoy the water.
Unfortunately, every activity in the pool is done with a song, which is the usual repetitive jingles of children's songs. Fortunately there are no other fathers in the group and none of my Army buddies are there to see me. My own view of my manhood takes a bit of a hit when I am singing songs that start with "The frog says.."
There are some hot moms out there. I am going to have to start working out again.
P.S. Thanks to our friends and neighbours for helping me with the girls.
Unfortunately, every activity in the pool is done with a song, which is the usual repetitive jingles of children's songs. Fortunately there are no other fathers in the group and none of my Army buddies are there to see me. My own view of my manhood takes a bit of a hit when I am singing songs that start with "The frog says.."
There are some hot moms out there. I am going to have to start working out again.
P.S. Thanks to our friends and neighbours for helping me with the girls.
Thursday, August 30, 2007
Happy Birthday Twins!
This week, the girls' had their first birthday. What a disaster.
One year is a bit young to get the whole presents thing, so I did not expect much. Dirt on the floor is new and exciting to a one year old, so a present is not much different.
For those of you do not know, putting a sparkler on a cake for a one year old is not a good idea.
After that, things went a bit downhill. I opened the presents, but Katherine was still a bit upset. Only the cake calmed her down, as she proceeded to shove fistfuls, as much as she could hold in her hand.
Katherine gets upset at times, but it usually doesn't last very long. That night she spent 45 minutes to an hour screaming as we were trying to put her to sleep, and not normal screaming, but the extremely loud, "I am really upset", screaming. Nothing we did could calm her down. We eventually just had to put her down and let it run its course. That is the first time she has ever done anything like that.
First Birthday: Twins receive some books, stuffed animals, and a toy drum. Parents receive a screaming fit the likes of which they have never experienced before.
I guess we will call that even.
One year is a bit young to get the whole presents thing, so I did not expect much. Dirt on the floor is new and exciting to a one year old, so a present is not much different.
For those of you do not know, putting a sparkler on a cake for a one year old is not a good idea.
After that, things went a bit downhill. I opened the presents, but Katherine was still a bit upset. Only the cake calmed her down, as she proceeded to shove fistfuls, as much as she could hold in her hand.
Katherine gets upset at times, but it usually doesn't last very long. That night she spent 45 minutes to an hour screaming as we were trying to put her to sleep, and not normal screaming, but the extremely loud, "I am really upset", screaming. Nothing we did could calm her down. We eventually just had to put her down and let it run its course. That is the first time she has ever done anything like that.
First Birthday: Twins receive some books, stuffed animals, and a toy drum. Parents receive a screaming fit the likes of which they have never experienced before.
I guess we will call that even.
Sunday, August 12, 2007
Home Alone: Day 5
The Wife comes home tomorrow.
Yesterday and today went very well. I think I have a hang of this Mr Mom stuff. In fact, I got the kitchen clean for the first time in a year.
It is easy to keep things in proper order when you are by yourself. When the Wife is here, she usually makes dinner. Unfortunately, she thinks that making dinner means that just about every pot, pan dish or utensil must be used. And she leaves them all piled up in the sink for me to deal with. I prefer to clean as I go, to keep my workspace in good order and minimize the mountain of dishes at the end.
I have a good feeling that I can handle when she gets back to work. I like to be organized, and the house is still disorganized from when we moved two years ago. I have been deferring to her when it comes to the house, but it's time for me to embrace the housewife job fully.
There's a new sheriff in town.
Yesterday and today went very well. I think I have a hang of this Mr Mom stuff. In fact, I got the kitchen clean for the first time in a year.
It is easy to keep things in proper order when you are by yourself. When the Wife is here, she usually makes dinner. Unfortunately, she thinks that making dinner means that just about every pot, pan dish or utensil must be used. And she leaves them all piled up in the sink for me to deal with. I prefer to clean as I go, to keep my workspace in good order and minimize the mountain of dishes at the end.
I have a good feeling that I can handle when she gets back to work. I like to be organized, and the house is still disorganized from when we moved two years ago. I have been deferring to her when it comes to the house, but it's time for me to embrace the housewife job fully.
There's a new sheriff in town.
Saturday, August 11, 2007
Home Alone: Day 4
Things are going well.
Thursday was horrible, as Katherine was in a mood and would not stop going to her sister to play with her. We are trying not to discourage her from interacting with Jocelyn, but it is hard when playing consist of steamrolling over her or lying on her face.
Other than that, I have not left the house since the Wife left. The weather has been poor, constant rain or very cloudy, so I have not been able to put Katherine in her pool. Today looks better, with more sun. We are all going out no matter what. I don't care if it is to buy toilet paper, but I am getting out of this house before I go squirrelly.
Thursday was horrible, as Katherine was in a mood and would not stop going to her sister to play with her. We are trying not to discourage her from interacting with Jocelyn, but it is hard when playing consist of steamrolling over her or lying on her face.
Other than that, I have not left the house since the Wife left. The weather has been poor, constant rain or very cloudy, so I have not been able to put Katherine in her pool. Today looks better, with more sun. We are all going out no matter what. I don't care if it is to buy toilet paper, but I am getting out of this house before I go squirrelly.
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