J has been in the hospital for the past week.
It is not as bad as last time, but he left lung is collapsed and she had a lot of mucus in that lung. She has not been intubated, so that is good and means that she may be out sooner. She has shown some improvement in the last few days, and, in my view, she seems like her old self. However, that lung needs to inflate, and the going seems to be very slow.
Not much we can do but wait for her to get better. I had hoped that it would only be a week, but that is not going to happen. I think 1-2 weeks more.
Showing posts with label pneumonia. Show all posts
Showing posts with label pneumonia. Show all posts
Thursday, March 01, 2012
Saturday, October 15, 2011
Hosptial Update
J is doing well.
The breathing tube came out a few days ago and a bunch more lines came out yesterday. Right now she only has her feeding attached (which she would have at home anyway) and a breathing mask which forces air into her lungs to keep them inflated (called bipap (sp?))
I am not sure she even needs that. She looks back to her normal self. In fact, she has for at least the last five days. They are still very cautious and are saying that it will probably be another 7-10 days. That seems way too long to me. I have already put them on notice that I think she is good now. I will give them over the weekend to see how she does and then really start to push it.
The breathing tube came out a few days ago and a bunch more lines came out yesterday. Right now she only has her feeding attached (which she would have at home anyway) and a breathing mask which forces air into her lungs to keep them inflated (called bipap (sp?))
I am not sure she even needs that. She looks back to her normal self. In fact, she has for at least the last five days. They are still very cautious and are saying that it will probably be another 7-10 days. That seems way too long to me. I have already put them on notice that I think she is good now. I will give them over the weekend to see how she does and then really start to push it.
Monday, October 03, 2011
Three Steps Forward, Two Steps Back
J has been in the hospital for over a week now.
Overall, she is doing much better. She is off the morphine, the blood pressure drugs and her 10 day antibiotic series ends tomorrow.
She is still has the breathing tube in. They hoped to remove it as early as last Wednesday, but she is not ready. The way they do it is to slowly lower the amount of pressure it is putting into her lungs. As they lower the pressure at some point she has a bit of trouble breathing, forcing them to raise it up. However, each time the new standard seems to be lower, so we are making slow progress. The problem is her left lung. Due to her curved spine, her left lung is squished in her body and this is where the pneumonia always starts. Every day they seem hopeful that they might be able to remove the tube in 2 days, but every night she seems to have trouble with the lower level of pressure, forcing them to raise it again. But we are getting closer. The pressure level is a lot lower then when she first came in.
I am hopeful that it may be removed soon, but I have learned to take their predictions with a grain of salt.
As of Friday, they have confirmed that she has another bug, this one quite nasty and tough. She may have caught it in the hospital. Fortunately, it has not advanced far (not like the last one), so it may not take as long to kill. They recently upped the dosage of the antibiotic, so that seems a bit of a concern to me.
More updates as they come.
Overall, she is doing much better. She is off the morphine, the blood pressure drugs and her 10 day antibiotic series ends tomorrow.
She is still has the breathing tube in. They hoped to remove it as early as last Wednesday, but she is not ready. The way they do it is to slowly lower the amount of pressure it is putting into her lungs. As they lower the pressure at some point she has a bit of trouble breathing, forcing them to raise it up. However, each time the new standard seems to be lower, so we are making slow progress. The problem is her left lung. Due to her curved spine, her left lung is squished in her body and this is where the pneumonia always starts. Every day they seem hopeful that they might be able to remove the tube in 2 days, but every night she seems to have trouble with the lower level of pressure, forcing them to raise it again. But we are getting closer. The pressure level is a lot lower then when she first came in.
I am hopeful that it may be removed soon, but I have learned to take their predictions with a grain of salt.
As of Friday, they have confirmed that she has another bug, this one quite nasty and tough. She may have caught it in the hospital. Fortunately, it has not advanced far (not like the last one), so it may not take as long to kill. They recently upped the dosage of the antibiotic, so that seems a bit of a concern to me.
More updates as they come.
Sunday, September 25, 2011
Back to the Hospital
J is in the Pediatric Intensive Care Unit of the Stollery.
We had to call an Ambulance for her last night around supper time.
She has been sick for the last few days. She is at high risk for pneumonia. Because she doesn't move much a cold can quickly become pneumonia. Most children in her situation get pneumonia and die, eventually. I expect that one of these times, she will not be able to recover.
She seemd to be ok on Friday. We have a caregiver come in once a week, on Friday. She had a daughter in J's situation, so when she is sick I always get her as a second opinion. We were both concerned, but she did some physical therapy we do in these situations and she seemed better throughout the day.
Several time I have taken J in to the doctor concerned that she might have pneumonia, only to have her be ok. Other times we waited too long and had to go to the hospital. This was one of the latter times. Yesterday she was coughing a bit and sleeping more than usual but I thought this just might be due to the cold and her body trying to get over it. I checked her again later and she was very pale. I picked up her arms and they dropped to her sides like a dead fish. Her breathing was very shallow. I knew this was not normal and more than just "cold" sick.
They sent us the paramedics and had to send the ambulance from Tofield as all the others were on calls. After putting in a breathing tube, we took the ride to the Stollery, siren screaming, the full meal deal. Thanks to everyone on Whyte Ave who moved quickly out of our way.
She seemed to be stable throughout the ride but as we arrived at the hospital, her heart rate dropped dangerously. As we started moving through the emergency ward, the paramedic monitoring her vitals announces "Heart rate dropping, 50. We have to move, now." Since her heart rate was around 120 at home when they were working on her, that is quite low. We start running through the ward with him calling out progressively lower numbers. "Forty-five. Forty. Now thirty-five. Thirty." I thought her heart was going to stop right there. They got her in and started working on her.
I have been the "Concered Parent" a number of times now, and I always find it interesting how the medical people deal with me. Not that they don't like the family/parents, but you know that parents can be add complications to their job. They are doing things that may not look nice to your child and you can see how a hysterical parent can be distracting. I find it interesting how they offer to get you to sit down (always in a corner where it is harder to see), and ask you all this background information such as name, date of birth, Alberta Health Card number (J spent a month in this hospital when she was born, what with computers I am sure they have all this stuff). The one thing they do ask which I like to answer is about her condition, is she usually this pale, what other hospital stays, etc. This information is useful, might help them and it does serve to distract me.
They got her stabilized and up to the PICU. The wife and K came to pick me up and we left at about 11 pm last night. I am about to leave to spend some time with her. We called this morning and she is stable although the nurse told me that her heart rate is down a bit. They think this is due to all the drugs they have running through her system. They are taking her off some of these slowly, so things should go up.
Thanks to all the doctors, nurses and EMT's who helped my daughter last night.
We had to call an Ambulance for her last night around supper time.
She has been sick for the last few days. She is at high risk for pneumonia. Because she doesn't move much a cold can quickly become pneumonia. Most children in her situation get pneumonia and die, eventually. I expect that one of these times, she will not be able to recover.
She seemd to be ok on Friday. We have a caregiver come in once a week, on Friday. She had a daughter in J's situation, so when she is sick I always get her as a second opinion. We were both concerned, but she did some physical therapy we do in these situations and she seemed better throughout the day.
Several time I have taken J in to the doctor concerned that she might have pneumonia, only to have her be ok. Other times we waited too long and had to go to the hospital. This was one of the latter times. Yesterday she was coughing a bit and sleeping more than usual but I thought this just might be due to the cold and her body trying to get over it. I checked her again later and she was very pale. I picked up her arms and they dropped to her sides like a dead fish. Her breathing was very shallow. I knew this was not normal and more than just "cold" sick.
They sent us the paramedics and had to send the ambulance from Tofield as all the others were on calls. After putting in a breathing tube, we took the ride to the Stollery, siren screaming, the full meal deal. Thanks to everyone on Whyte Ave who moved quickly out of our way.
She seemed to be stable throughout the ride but as we arrived at the hospital, her heart rate dropped dangerously. As we started moving through the emergency ward, the paramedic monitoring her vitals announces "Heart rate dropping, 50. We have to move, now." Since her heart rate was around 120 at home when they were working on her, that is quite low. We start running through the ward with him calling out progressively lower numbers. "Forty-five. Forty. Now thirty-five. Thirty." I thought her heart was going to stop right there. They got her in and started working on her.
I have been the "Concered Parent" a number of times now, and I always find it interesting how the medical people deal with me. Not that they don't like the family/parents, but you know that parents can be add complications to their job. They are doing things that may not look nice to your child and you can see how a hysterical parent can be distracting. I find it interesting how they offer to get you to sit down (always in a corner where it is harder to see), and ask you all this background information such as name, date of birth, Alberta Health Card number (J spent a month in this hospital when she was born, what with computers I am sure they have all this stuff). The one thing they do ask which I like to answer is about her condition, is she usually this pale, what other hospital stays, etc. This information is useful, might help them and it does serve to distract me.
They got her stabilized and up to the PICU. The wife and K came to pick me up and we left at about 11 pm last night. I am about to leave to spend some time with her. We called this morning and she is stable although the nurse told me that her heart rate is down a bit. They think this is due to all the drugs they have running through her system. They are taking her off some of these slowly, so things should go up.
Thanks to all the doctors, nurses and EMT's who helped my daughter last night.
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